Guaranteeing rights and special needs
The Spanish Federation of Parents of Children with Cancer (FEPNC) has made an urgent call for adolescents diagnosed with cancer to be cared for in Pediatric Oncology Units up to the age of 18. This measure seeks to guarantee their rights and address their special needs during medical, psycho-oncological and social treatment. Currently, some hospital centers in the country still care for these young people in Adult Units, which does not meet the appropriate conditions for their comprehensive care.
Education and family support
One of the advantages of care in Pediatric Oncology Units is the possibility of having hospital classrooms, which allows adolescents to continue their education during treatment. Furthermore, the presence of their parents or close people during hospitalization is a fundamental right that is guaranteed in these units.
Transition protocols and rights of minors
The transition of adolescents to Adult Units can generate stress and break the bond of trust established with Pediatric Oncology professionals. Therefore, it is necessary to have specific protocols that prepare this transition and ensure comprehensive care. The European Charter of the Rights of Hospitalized Children establishes principles that must be applied in all countries of the European Union, including the right of minors to remain in pediatric units and avoid hospitalization among adults.
Experience at the La Paz University Hospital
The La Paz University Hospital in Madrid has implemented a long-term follow-up program for survivors of childhood and adolescent cancer. This service, promoted by the FEPNC and the Children’s Oncology Association of Madrid (ASION), seeks to improve the quality of life of this population, which often experiences late consequences of treatment. The multidisciplinary care provided by Psycho-oncology and Social Work professionals contributes to addressing the specific needs of these young people.